Lesson 9 - Working With Families and Carers

1. Introduction

Mental health care rarely happens in isolation.

Many people are supported by:

Partners.

Parents.

Adult children.

Siblings.

Friends.

Neighbours.

Other significant people.

Some of these people identify themselves as carers.

Others do not.

A husband may simply think:

“I am looking after my wife.”

A daughter may say:

“He’s my dad. Of course I help him.”

A friend may be providing several hours of practical and emotional support every week without ever describing themselves as a carer.

NHS England defines a carer as someone, including an adult or child, who provides unpaid support to a family member, partner or friend who needs help because of illness, disability, a mental health problem, addiction or another difficulty.

Families and carers can be enormously important in mental health care.

They may:

Notice deterioration before professionals do.

Recognise early warning signs.

Support medication.

Encourage attendance.

Help someone manage daily activities.

Provide practical support.

Offer emotional support.

Help identify relapse.

Support crisis plans.

Provide information that the patient has difficulty communicating.

But family involvement is not automatically beneficial.

Relationships may also involve:

Conflict.

Criticism.

Control.

Dependency.

Trauma.

Abuse.

Exploitation.

Over-involvement.

Disagreement.

Different expectations about treatment.

The practitioner therefore needs to avoid two equally problematic assumptions:

“Families should always be involved.”

and:

“Families should stay out of clinical care.”

The correct question is:

“What form of involvement is appropriate for this person, this family and this situation?”

NICE recommends discussing with the person using mental health services whether and how they want family members or carers involved, and revisiting this over time rather than treating it as a one-off decision. Where the person agrees, family and carers should be encouraged to take part appropriately in care and decision-making.

This lesson also involves one of the most commonly misunderstood areas of mental health practice:

Confidentiality.

Case workers sometimes become so worried about breaching confidentiality that they stop engaging with families altogether.

A relative phones and says:

“I think my son is becoming very unwell.”

The practitioner replies:

“I can’t speak to you because of confidentiality.”

That may be an important missed opportunity.

There is a crucial difference between:

Receiving information.

And disclosing confidential information.

You may not be able to tell a family member about the patient's diagnosis, medication or appointments.

That does not automatically mean you cannot listen to what the family member has observed.

This distinction can be clinically important.

This lesson builds on several earlier lessons.

Working Within the MDT taught us that safe care depends on information being shared appropriately.

Professional Boundaries taught us that relationships need clear limits.

Working Within Your Competence taught us when concerns require escalation.

Building Rapport and Active Listening taught us how to hear people's experiences without immediately judging them.

Managing Difficult Conversations taught us how to manage disagreement.

Working with families and carers brings these themes together.

The central principle is:

Keep the patient at the centre.

Recognise the value of carers.

Respect confidentiality.

Listen carefully.

Support carers in their own right.

And remember that family involvement should improve care rather than replace the patient's autonomy.

2. Learning Outcomes

By the end of this lesson learners should be able to:

  • Explain the potential role of families and carers in mental health assessment, treatment, recovery and relapse prevention.

  • Distinguish between receiving information from a carer and disclosing confidential information about a patient.

  • Discuss consent and information sharing with patients and carers in a clear and practical way.

  • Recognise carer strain and understand when carers may need assessment or support in their own right.

  • Identify situations in which family involvement may be helpful, inappropriate, unsafe or require safeguarding consideration.

  • Recognise when family disagreement, capacity concerns, safeguarding issues or significant deterioration require escalation to senior clinicians.

3. The Lecture

Who Is a Carer?

A carer is not necessarily:

A spouse.

A parent.

Someone living in the same house.

Someone receiving Carer’s Allowance.

Someone formally identified in the care plan.

A carer may be:

A teenager supporting a parent.

An elderly spouse.

An adult child.

A sibling.

A close friend.

A former partner.

A neighbour.

NICE recommends that health and social care practitioners actively identify carers because people may not recognise themselves as carers or know that support is available.

A useful question is:

“Who helps you when things are difficult?”

or:

“Is there anyone who regularly supports you with your mental health or day-to-day life?”

This can identify informal support networks without imposing labels.

The Patient Remains at the Centre

Family involvement should not automatically displace the patient.

For example:

A parent attends an appointment with their adult son.

The practitioner asks the parent every question.

“How has he been sleeping?”

“Is he taking medication?”

“Has he been going out?”

The patient becomes a spectator in their own appointment.

Unless there is a specific reason otherwise, speak to the patient directly.

You can involve the relative without treating the patient as absent.

For example:

“How has sleep been from your point of view?”

Then later:

“Is there anything your mum has noticed that you think would be useful for us to hear?”

NICE emphasises autonomy, active participation and partnership with people using mental health services.

Ask the Patient What They Want

Do not assume what family involvement should look like.

Ask:

“Who would you like involved in your care?”

“What would you be comfortable with us discussing with them?”

“Is there anything you do not want shared?”

“Would you like them involved in appointments?”

“Would you want us to contact them if you became very unwell?”

“Who should we contact in a crisis?”

These discussions should be revisited.

Preferences can change.

Someone may initially want no family involvement.

Later they may change their mind.

Someone may want their partner involved in crisis planning but not in discussions about therapy.

Consent can be nuanced.

Consent Is Not Always All or Nothing

A common mistake is asking:

“Can we speak to your mother?”

The patient says:

“Yes.”

But what exactly does that mean?

Can staff discuss:

Diagnosis?

Medication?

Risk?

Appointments?

Past history?

Therapy?

Substance use?

A more useful approach is specific.

For example:

“You've said you're happy for us to speak with your mother about appointments and the crisis plan, but you don't want us discussing the details of your therapy. Have I understood that correctly?”

Specific agreement reduces future misunderstanding.

Confidentiality

Confidentiality is essential to trust.

Patients need to know that personal information is not casually shared.

NICE recommends being clear with people using mental health services about the limits of confidentiality and about circumstances in which information may be shared with others.

But confidentiality should not become a blanket barrier between services and carers.

There are several different situations.

Receiving Information Versus Giving Information

This distinction is vital.

A patient's mother telephones.

She says:

“My son hasn't slept for four nights and he's started saying that television presenters are sending him messages.”

You may not have consent to tell her:

His diagnosis.

Medication.

Appointment dates.

What the psychiatrist thinks.

But you can usually listen to what she is telling you.

You might say:

“Thank you for letting us know. I may not be able to discuss details of his care without his permission, but I can listen to the information you're giving me and make sure it reaches the clinical team.”

This is often much more helpful than:

“I can't talk to you because of confidentiality.”

Confidentiality Is Not the Same as Refusing Contact

Even where the patient does not want information shared, NICE recommends that carers can still be directed towards general information and carer support services.

For example, you may be able to explain:

How the service works.

How carers can access their own support.

How to contact emergency services.

How to request a carer's assessment.

General information about mental health conditions.

You may not be able to discuss the specific patient's private clinical information.

Explain Confidentiality Early

Carers are more likely to understand boundaries if they are explained before conflict develops.

You might say:

“I want to involve you as helpfully as possible. There may be some details I cannot share without Alex’s permission. That does not mean I cannot listen to your concerns or give you general information and support.”

This is much better than repeatedly saying:

“Confidentiality.”

without explanation.

Confidentiality and Risk

There are circumstances where information may need to be shared without consent.

For example, where there is a serious and immediate concern about:

The patient's safety.

Another person's safety.

Abuse.

Safeguarding.

The exact decision should follow:

Law.

Professional guidance.

Organisational policy.

The nature of the risk.

Case workers should not make complex information-governance decisions alone where there is uncertainty.

Escalate to a senior clinician.

Carers May Hold Crucial Risk Information

Imagine a patient says:

“I'm sleeping normally.”

Their partner says privately:

“They haven't slept for three nights and they've been driving around at 3am.”

That discrepancy matters.

Do not automatically decide:

“The patient is lying.”

There may be many explanations.

But the information requires consideration.

Similarly, a patient may deny suicidal intent while a family member reports that they recently wrote goodbye messages.

The family member's information should not be dismissed because it did not come directly from the patient.

Relevant collateral information can be clinically important.

Collateral Information

Collateral information means information obtained from sources other than the patient.

This may include:

Family.

Carers.

GP records.

Other professionals.

Previous clinical records.

The purpose is not to undermine the patient's account.

It is to build a fuller picture.

A patient may genuinely be unaware of:

Changes in behaviour.

Reduced functioning.

Medication effects.

Sleep disturbance.

Cognitive difficulties.

Families may notice these.

Families Are Not Automatically Correct

Another important principle:

Do not automatically accept the family's account over the patient's.

Family members have their own:

Perspectives.

Emotions.

Beliefs.

Relationships.

Biases.

Concerns.

A parent may say:

“She’s completely incapable of living independently.”

The patient may say:

“My mother never lets me do anything.”

Both statements need exploration.

The clinician's task is not to decide instantly who is right.

Gather information.

Understand the relationship.

Keep the patient's autonomy central.

Families Can Be Both Supportive and Stressful

A person may rely heavily on their family while also experiencing significant conflict with them.

For example:

A mother reminds her son to take medication.

She also criticises him constantly for being unemployed.

The same relationship can contain:

Support.

Stress.

Love.

Conflict.

Dependency.

Family work often requires tolerance of complexity.

Do Not Idealise Families

Practitioners sometimes assume:

“Family involvement is always positive.”

It is not.

A patient may not want family involvement because of:

Previous abuse.

Domestic violence.

Homophobia.

Transphobia.

Religious conflict.

Coercive control.

Financial exploitation.

Childhood trauma.

Family estrangement.

Cultural conflict.

Stigma.

NICE explicitly advises practitioners to remember that reluctance to involve family may reflect previous experiences of violence or abuse, not simply illness or poor engagement.

Take that seriously.

Do Not Pathologise Estrangement

A patient says:

“I don’t speak to my father.”

Do not immediately think:

“Family dysfunction.”

Perhaps this boundary is protective.

Ask:

“Is there anything about that relationship that would be helpful for us to understand?”

Do not pressure reconciliation.

The Support Network May Not Be Biological Family

For some people, the most important support network may include:

Friends.

Partners.

Former partners.

Members of a faith community.

Chosen family.

Neighbours.

Peer-support workers.

LGBTQ+ community members.

NICE's mental health guidance uses a broad definition that can include friends, advocates and significant others who have a supporting role.

Ask the person who matters to them.

Carers as Experts by Experience

Carers may know things that services do not.

They may know:

What the person is like when well.

The earliest signs of relapse.

What usually helps.

What usually makes things worse.

How the person communicates distress.

Previous crisis patterns.

Practical barriers to treatment.

What the patient values.

This knowledge can improve care.

NICE's quality standard for adult carers notes that carers often have valuable knowledge and skills regarding the person they support and, with consent, should be supported to participate in decision-making and care planning.

Ask Useful Questions

Questions to carers might include:

“What have you noticed changing?”

“What is different from their usual self?”

“When did you first notice it?”

“What normally happens when they become unwell?”

“What has helped previously?”

“What makes things worse?”

“What are you most worried about?”

“What support are you currently providing?”

“How is this affecting you?”

These questions turn family involvement into useful clinical information.

Do Not Turn the Family Into Unpaid Staff

There is a risk that services begin relying excessively on relatives.

For example:

“His mum will manage the medication.”

“His wife will monitor him overnight.”

“His daughter can make sure he eats.”

Ask:

Is this realistic?

Has the carer agreed?

Are they able to do it?

Is it safe?

What impact is this having on them?

The Care Act statutory guidance emphasises assessing whether a caring role is sustainable, including whether the carer is willing and able to continue providing support.

A family member is not automatically available 24 hours a day.

Carer Strain

Supporting someone with severe mental illness can be demanding.

Carers may experience:

Sleep disruption.

Anxiety.

Depression.

Social isolation.

Financial problems.

Relationship strain.

Employment difficulties.

Fear.

Guilt.

Burnout.

Physical health problems.

A carer may say:

“I’m fine. I just need him to get better.”

Ask gently:

“And how are you managing?”

The carer is a person with needs too.

Carer Assessment

Under the Care Act framework in England, carers may have a right to an assessment of their own needs.

NICE recommends actively identifying carers and making sure they know about:

Their right to a carer's assessment.

How to obtain one.

Available community support.

Case workers may not themselves carry out statutory carer assessments unless that falls within their role.

But they should know how carers can access them.

What Might a Carer Need?

Support may include:

Information.

Emotional support.

Peer support.

Respite.

Benefits advice.

Employment support.

Training.

Crisis information.

A carer's assessment.

Support groups.

Help understanding the mental health condition.

Practical advice.

Do not assume the only useful support is more information about the patient.

Ask the Carer Directly

Useful questions include:

“What is the hardest part of the caring role for you?”

“What support do you have?”

“Are you getting enough sleep?”

“Is caring affecting work?”

“Do you ever feel unable to manage?”

“Are you frightened at home?”

“Do you know who to contact in a crisis?”

The answer may reveal significant unmet need.

When Carers Are Frightened

A parent says:

“I’m scared of him when he gets angry.”

Do not respond:

“He’s never violent with us.”

The carer's safety matters.

Clarify:

“What has happened?”

“Has he threatened you?”

“Has anyone been hurt?”

“Do you feel safe going home?”

This may require:

Risk assessment.

Safeguarding.

Senior clinical review.

Do not assume carers can manage behaviour that professionals find difficult.

Safeguarding Works in Both Directions

Safeguarding concerns may involve:

A patient being harmed by a carer.

A carer being harmed by the patient.

Mutual conflict.

Neglect.

Financial abuse.

Coercive control.

Carer burnout leading to unsafe care.

The Care Act statutory guidance explicitly recognises that carers may witness abuse, experience harm themselves, or intentionally or unintentionally cause harm or neglect to the person they support.

Do not romanticise caring relationships.

Assess the actual situation.

Families and Medication

Carers may support medication by:

Collecting prescriptions.

Providing reminders.

Noticing adverse effects.

Reporting missed doses.

But do not automatically make the family responsible for medication management.

A relative may say:

“I hide the tablets in his food.”

That requires immediate clinical discussion.

Medication administration raises issues around:

Consent.

Capacity.

Covert administration.

Safety.

Clinical authority.

A case worker should escalate rather than improvise advice.

Medication Questions From Carers

Relative:

“Should I give her an extra tablet if she becomes agitated?”

Do not guess.

If this is not clearly documented in an authorised medication plan:

“I can’t advise you to alter the medication. Let me check the clinical plan with the prescriber.”

Stay within competence.

Families and Relapse Prevention

Families may be extremely useful in identifying relapse.

For example, a person with bipolar disorder may have early signs such as:

Sleeping less.

Speaking faster.

Increasing spending.

Starting multiple projects.

Becoming irritable.

A relative may detect these before the patient recognises them.

Where the patient agrees, include family observations in relapse planning.

Ask:

“What are the earliest changes you notice?”

Then agree:

Who should be contacted?

At what point?

What should happen?

Crisis Planning

Carers should know:

Who to contact.

What constitutes an emergency.

What information will help clinicians.

What they are expected to do.

What they are not expected to do.

NICE psychosis guidance recommends giving carers information about services, treatment, recovery and how to get help in a crisis.

Do not create crisis plans that quietly assume:

“Family will manage.”

Specify actual responsibilities.

Family Intervention Is a Specialist Intervention

There is an important distinction between:

Working collaboratively with a family.

And delivering formal family intervention.

Case workers can:

Listen to carers.

Include them in agreed care discussions.

Provide general information.

Support communication.

Identify concerns.

Help coordinate care.

Formal family intervention is a structured psychological intervention.

For psychosis and schizophrenia, NICE recommends family intervention for families who live with or have close contact with the person, with specific requirements for duration, content and practitioner competence.

Do not begin delivering family therapy because you are comfortable speaking with relatives.

Stay within your role.

Families and Psychosis

Family involvement may be particularly valuable in psychosis.

A relative may notice:

Sleep reduction.

Withdrawal.

Increasing suspiciousness.

Changes in self-care.

Medication difficulties.

Unusual behaviour.

NICE recommends negotiating information sharing between the person and carers as early as possible and regularly reviewing those arrangements where communication becomes difficult.

The emphasis is collaboration.

Not creating two competing camps.

Avoid Taking Sides

Patient:

“My mother controls everything.”

Mother:

“She has no insight. I have to control everything.”

The practitioner may be pulled into choosing sides.

Try:

“It sounds as though you both see the situation very differently. I’d like to understand each perspective.”

Then clarify:

Patient goals.

Safety.

Capacity where relevant.

Actual support needs.

Family concerns.

Stay professionally curious.

Triangulation

Triangulation occurs when conflict between two people begins to pull a third person into taking sides.

For example:

Patient:

“Tell my husband that he is making my anxiety worse.”

Husband:

“Tell her she needs to stop using anxiety as an excuse.”

The case worker can easily become a messenger.

Avoid:

“Your husband said…”

“Your wife thinks…”

Instead, where appropriate:

“This sounds like something that needs to be discussed directly, with support, rather than me carrying messages between you.”

Do not become part of the conflict.

When Families Disagree With Treatment

A relative may strongly disagree with:

Medication.

Diagnosis.

Hospital admission.

Discharge.

Therapy.

Risk assessment.

Listen first.

Ask:

“What are you most concerned about?”

They may have information the team does not know.

Or they may misunderstand the plan.

Explain only what you are authorised to explain.

If the disagreement concerns significant clinical decisions:

Escalate to the responsible clinician.

When Family Wishes Conflict With Patient Wishes

For adults with capacity, the patient generally remains the decision-maker regarding their own care.

Families may have strong views.

For example:

Mother:

“He needs to live with me.”

Patient:

“I want my own flat.”

The mother's anxiety does not automatically override the patient's preferences.

The team should consider:

Capacity.

Risk.

Support needs.

Safeguarding.

The person's wishes.

Available options.

Do not assume relatives are substitute decision-makers simply because they care deeply.

Mental Capacity

Capacity is decision-specific and time-specific.

A diagnosis of mental illness does not automatically mean a person lacks capacity.

NICE states that practitioners should begin by assuming capacity unless there is evidence indicating that assessment is required.

Case workers should understand the principle but should not undertake complex capacity assessments independently unless this falls within their role and competence.

Where capacity is uncertain:

Seek senior clinical advice.

Family Involvement When Capacity Is Lacking

If a person lacks capacity for a particular decision, families and carers may become important sources of information about:

Past wishes.

Values.

Beliefs.

Preferences.

Decision-making history.

NICE recommends consulting appropriate family, carers and trusted people during best-interests decision-making while keeping the person themselves involved as far as possible.

Importantly:

The family does not automatically become the decision-maker.

Who has legal authority depends on the specific circumstances.

For example:

A valid health and welfare Lasting Power of Attorney may have relevant authority.

A court-appointed deputy may have relevant powers.

Otherwise, the relevant healthcare decision-maker may remain responsible.

Complex cases should be escalated.

“Next of Kin”

The phrase “next of kin” is often misunderstood.

Family members sometimes say:

“I’m next of kin, so you have to tell me.”

Being described as next of kin does not automatically grant unrestricted access to confidential health information or general decision-making authority.

Do not argue legal detail if unsure.

Say:

“I understand that you are the person identified as next of kin. What I can share still depends on consent, confidentiality and the specific decision involved. I can check this with the senior clinician if needed.”

Information Sharing Should Be Reviewed

A patient may initially say:

“Don’t tell my parents anything.”

Three months later:

“My mum can be involved now.”

Or the reverse.

Do not rely indefinitely on old consent documentation.

NICE recommends revisiting how family involvement and information sharing should work as circumstances change.

Family Meetings

A family meeting can be useful where:

Care planning is complex.

Several people provide support.

There are differing expectations.

Communication has broken down.

Discharge is approaching.

Relapse planning is needed.

However, meetings need purpose.

Beforehand clarify:

Who is attending?

Does the patient agree?

What will be discussed?

What information can be shared?

Who will lead?

What outcome is needed?

The Patient Should Not Be Ambushed

Avoid inviting several relatives without clearly discussing this with the patient.

Someone arriving to find:

Mother.

Father.

Partner.

Two professionals.

all waiting to discuss them may feel overwhelmed.

Explain the meeting in advance.

Structure a Family Meeting

A useful structure is:

Clarify purpose.

Set expectations.

Hear the patient.

Hear the family.

Identify shared concerns.

Clarify disagreements.

Agree practical actions.

Summarise.

Document.

Do not allow one participant to dominate the entire meeting.

Ask the Patient First Where Possible

For example:

“James, I’d like to start with you. What would you most like your family to understand?”

Then:

“Sarah, what are you most worried about?”

This keeps the conversation balanced.

Family Conflict During Meetings

Family meetings can become emotionally intense.

If arguments begin:

Slow down.

Clarify one issue at a time.

Avoid becoming referee to longstanding family disputes.

You might say:

“I can see this is a longstanding disagreement. For today we need to focus on what support is required for discharge.”

Stay within the clinical purpose.

Do Not Attempt Family Therapy Without Training

You may identify:

Conflict.

Poor communication.

Patterns.

That does not mean you should begin trying to restructure the family system.

Where specialist family therapy or family intervention is indicated:

Refer appropriately.

Carer Expectations

Carers may expect the service to:

Guarantee the patient takes medication.

Prevent all relapse.

Force attendance.

Share all information.

Provide constant supervision.

Keep the patient in hospital indefinitely.

These expectations may come from fear.

Do not dismiss them.

Explain realistically what the service can and cannot do.

Do Not Blame the Carer

Statements such as:

“You need to set firmer boundaries.”

may be overly simplistic.

A relative may be:

Terrified.

Exhausted.

Living with threats.

Trying to prevent suicide.

Managing severe psychosis.

Understand the context before advising.

Boundaries for Carers

Carers are allowed boundaries too.

A mother may say:

“I can’t have him living with me anymore.”

Do not immediately say:

“But he needs you.”

Explore:

What has happened?

Is she frightened?

Burnt out?

Unwell herself?

Carers are not obligated to provide unlimited care.

The sustainability of the caring role is specifically relevant to carer's assessments under Care Act guidance.

When a Carer Wants to Stop Caring

This can feel clinically alarming.

But respond calmly.

Ask:

“What has brought you to that point?”

“What can you no longer manage?”

“Is anyone currently unsafe?”

The answer may reveal:

Burnout.

Violence.

Sleep deprivation.

Financial crisis.

Physical illness.

A change in patient need.

This may require urgent review of the care plan.

Young Carers

Children and young people may provide substantial support to parents or siblings experiencing mental illness.

Possible responsibilities include:

Cooking.

Cleaning.

Managing medication.

Looking after younger siblings.

Providing emotional support.

Managing crises.

Calling emergency services.

A young person may not identify themselves as a carer.

The wider family context must therefore be considered.

Government guidance recognises young carers separately and requires family circumstances to be considered so that children providing care are not overlooked.

If you become aware that a child is undertaking substantial or inappropriate caring responsibilities:

Discuss with the appropriate senior clinician.

Consider children's services or young-carer support according to local pathways.

Consider safeguarding where relevant.

Children Should Not Become Crisis Managers

A child should not be relied upon to:

Monitor suicide risk.

Physically manage aggression.

Administer complicated medication.

Supervise an acutely unwell adult overnight.

Keep younger siblings safe during repeated crises without adult support.

If this appears to be happening:

Escalate.

Cultural Considerations

Family roles vary across cultures.

Some people may expect:

Extended family involvement.

Collective decision-making.

Elder involvement.

Religious leadership.

Strong family responsibility.

Others may prioritise individual privacy.

Do not assume either approach.

Ask:

“Who would normally be involved in important decisions in your family?”

Then balance preferences with:

Consent.

Autonomy.

Confidentiality.

Safety.

Legal requirements.

Language and Interpreters

Do not routinely use relatives as interpreters for sensitive clinical conversations.

This may create:

Confidentiality problems.

Translation errors.

Family pressure.

Loss of patient autonomy.

Missing disclosures.

Use appropriate professional interpreting services where required.

NICE recommends independent interpreters where communication needs require them.

Domestic Abuse and Coercive Control

Family involvement can be unsafe where there is:

Domestic abuse.

Coercive control.

Sexual abuse.

Financial abuse.

Threats.

Stalking.

Do not automatically involve the partner because they say:

“I’m the main carer.”

Speak to the patient privately where appropriate.

Ask:

“Do you feel safe at home?”

“Is anyone controlling who you see, where you go or your money?”

“Are you frightened of anyone?”

If concerns emerge:

Follow safeguarding procedures.

Family Members May Also Be Perpetrators

Never assume:

“Carer = safe person.”

Likewise, never assume:

“Patient = risk and carer = victim.”

Assess actual behaviour and circumstances.

Family Members May Need Their Own Clinical Help

A carer may disclose:

Severe depression.

Panic attacks.

Suicidal thoughts.

Substance misuse.

Do not turn their relative's case-worker appointment into treatment for the carer.

But do respond.

For example:

“What you've told me about feeling suicidal is important. We need to make sure you get support for yourself.”

Then follow the appropriate pathway based on urgency and your service procedures.

Carer Confidentiality

Carers may tell professionals something and say:

“Don’t tell him I said this.”

Be careful.

You should not casually promise secrecy.

Information may need to be used clinically.

It may also become difficult to act without revealing its source.

A helpful response before detailed disclosure might be:

“I’ll handle what you tell me carefully. If it raises serious safety concerns, I may need to share relevant information with the clinical team. I can’t always promise that the source of information will remain completely hidden.”

Follow local confidentiality and documentation procedures.

Documenting Information From Carers

Record information objectively.

For example:

“Patient’s partner telephoned and reported that he had slept approximately two hours per night for four nights and had spent £2,000 online.”

Avoid:

“Patient is clearly manic according to wife.”

The carer provides observations.

Clinical interpretation belongs to the appropriate clinician.

Distinguish Observation From Interpretation

Carer says:

“She is psychotic.”

Ask:

“What have you observed?”

They might say:

“She says cameras are watching her and she has covered all the windows.”

That is more clinically useful.

Similarly:

“He’s manic.”

“What have you noticed?”

“He hasn’t slept and he bought three cars.”

Ask for behaviours.

Family Members in Crisis

A family member may phone saying:

“I cannot manage him anymore.”

Do not respond:

“You just need to encourage him to use his coping skills.”

First establish:

What is happening?

Is anyone in danger?

Has mental state changed?

Is the carer safe?

Is the patient safe?

Does urgent assessment need to occur?

Crisis Information From Carers Can Change Urgency

For example:

Patient told service:

“I’m struggling.”

Mother says:

“He has barricaded himself in his room with a knife.”

The clinical picture is now different.

Escalate immediately.

Family Members and Suicide Risk

Relatives often notice warning signs such as:

Giving possessions away.

Goodbye messages.

Sudden withdrawal.

Searching online.

Stockpiling medication.

A significant change in mood.

If carers provide this information:

Take it seriously.

Do not say:

“He denied suicidal thoughts earlier so we’re not concerned.”

Risk assessment uses all relevant information.

Family Members and Violence Risk

Likewise, if a relative says:

“I’m frightened because he threatened to kill me last night.”

Do not assume this is merely family conflict.

Clarify.

Escalate appropriately.

Carers have a right to safety.

Supporting Carers Without Making Them Clinicians

Family members sometimes become hypervigilant.

They monitor:

Every mood.

Every meal.

Every sleep change.

Every medication dose.

This may create significant anxiety in the household.

Care plans should be proportionate.

Help carers understand:

What signs matter.

What does not require immediate action.

Who to contact.

What their role is.

What professional services remain responsible for.

Information About Crisis Thresholds

Useful information might include:

“If sleep drops substantially and energy rises unusually, contact the team.”

or:

“If he expresses suicidal intent or has taken an overdose, use the emergency pathway.”

Specific guidance is often more helpful than:

“Keep an eye on him.”

Recovery and Family Involvement

Families can sometimes become understandably risk-averse.

After seeing someone become severely unwell, they may fear any move towards independence.

For example:

Patient:

“I want to return to college.”

Parent:

“He cannot cope. Absolutely not.”

The parent's fear may be genuine.

Recovery-oriented care asks:

Can this goal be pursued safely and gradually?

The aim is not:

Maximum protection.

It is:

Appropriate support while rebuilding autonomy.

Avoid Creating Dependency

Family members may inadvertently do too much.

For example:

Making every phone call.

Speaking for the person.

Managing all appointments.

Solving every problem.

This may be necessary during acute illness.

But as recovery progresses, ask:

“What can the person begin doing themselves?”

Family support should ideally promote recovery rather than permanent dependence.

Carers and Relapse Anxiety

After a severe relapse, carers may interpret ordinary behaviour as illness.

The patient stays up late once.

Parent:

“The mania is coming back.”

Validate the fear.

“After the last episode, I can understand why changes in sleep make you anxious.”

Then return to the agreed relapse plan.

“What are the specific early warning signs we agreed to watch for?”

This prevents every variation becoming a crisis.

A Practical Framework: FAMILY

A useful framework for case workers is FAMILY.

F – Find Out Who Matters

Ask who supports the person and whom they want involved.

A – Agree Information Sharing

Clarify consent, confidentiality and what information can be shared.

M – Make Use of Carer Knowledge

Listen to observations about changes, risks, triggers and what helps.

I – Identify the Carer’s Needs

Ask how the caring role is affecting them and signpost appropriate support.

L – Look for Risk and Safeguarding

Consider safety for both the patient and the carer.

Y – Your Patient Remains at the Centre

Family involvement should support rather than unnecessarily replace autonomy.

Worked Clinical Scenario: Confidentiality

Tom is 27.

His mother phones the case worker.

She says:

“Tom hasn’t slept for four nights and he thinks people are following him.”

Tom previously said:

“Do not tell my mum anything about my care.”

Poor response:

“I’m sorry, confidentiality means I can’t speak to you.”

Better:

“I can’t discuss Tom’s private clinical information without his permission. I can listen to the information you have and make sure the clinical team receives it.”

The case worker then gathers relevant observations and escalates because there may be significant deterioration.

No confidential information needs to be disclosed.

Worked Clinical Scenario: Carer Strain

Aisha’s husband supports her following several episodes of severe depression.

During a review he says:

“I’m fine. I’ll manage.”

The case worker notices he appears exhausted.

They ask:

“How is the caring role affecting you?”

He explains:

“I haven’t slept properly for months because I keep checking she’s still breathing.”

This needs attention.

The case worker can:

Acknowledge the burden.

Explain carer support.

Signpost or facilitate access to a carer’s assessment.

Review whether the crisis plan is placing unrealistic responsibility on him.

Worked Clinical Scenario: Patient Does Not Want Family Involved

Emma says:

“Do not speak to my father.”

The case worker should not pressure:

“But family involvement is important.”

Instead:

“Okay. Is there anything about the relationship that would be helpful for us to understand?”

Emma says:

“He used to hit me.”

The refusal now has important meaning.

This may also raise safeguarding or trauma-related considerations.

Worked Clinical Scenario: Relative Demands Information

Father:

“I’m her father. Tell me what medication she’s taking.”

Case worker:

“I understand why you want to know. I need to respect her confidentiality, so I can’t give you specific information unless she has agreed to that. I can listen to any concerns you have, and I can give you general information about the service and carer support.”

Clear.

Respectful.

No argument.

Worked Clinical Scenario: New Risk Information

Patient:

“I’m okay. I’m not suicidal.”

Partner privately tells the team:

“She wrote letters to the children saying goodbye and has been collecting tablets.”

This information significantly changes the risk picture.

It should be escalated immediately.

The practitioner should not dismiss it because the patient denied suicidal thinking.

Worked Clinical Scenario: Family Conflict

Patient:

“My mum won’t let me do anything.”

Mother:

“She can’t be trusted to look after herself.”

The case worker avoids choosing sides.

Instead:

“Let’s separate this into specific areas. What things do you want to start managing yourself?”

The patient says:

“Appointments and money.”

Then the team can explore:

Capacity.

Current functioning.

Risk.

What support may be appropriate.

The problem becomes more manageable when moved from global accusations to specific tasks.

Worked Clinical Scenario: Carer Is Frightened

Mother:

“I lock my bedroom door now because I’m frightened of him.”

This is not simply a conversation about carer burden.

Clarify urgently:

What has happened?

Have there been threats?

Weapons?

Assaults?

Is she safe?

The situation may require:

Violence risk assessment.

Safeguarding.

Crisis review.

Police or emergency involvement depending on immediate circumstances.

Worked Clinical Scenario: Young Carer

A 14-year-old tells a case worker:

“I make sure Mum takes her tablets and I stay awake when she is really depressed because I’m scared she’ll hurt herself.”

This child is carrying a significant level of responsibility.

Do not praise them and leave the arrangement unchanged.

Escalate.

Consider:

The mother's care plan.

The child's welfare.

Young-carer support.

Safeguarding where relevant.

A child should not be the primary safety plan.

Worked Clinical Scenario: Covert Medication

A wife says:

“He refuses his medication, so I crush it into his tea. Is that okay?”

Do not provide informal approval.

Covert medication involves significant legal, ethical and clinical issues.

Say:

“I need you not to make further changes based on my advice. This needs urgent discussion with the responsible clinician.”

Escalate according to local policy.

Worked Clinical Scenario: Family Wants to Withdraw Support

Father:

“I can’t have him back home after discharge.”

Poor response:

“But he has nowhere else to go.”

Better:

“I can hear that you’ve reached the point where you don’t feel able to continue with the current arrangement. I need to understand what has happened and make sure the discharge team knows immediately.”

The family home should not be treated as an automatic discharge destination.

4. Clinical Perspective

Clinical Pearls

Confidentiality Does Not Mean Silence

You may be unable to disclose information and still be able to listen.

Ask the Patient Who Matters

Do not assume biological family are the preferred support network.

Revisit Consent

Family involvement preferences can change.

Carers Often Know the Baseline

Their observations may identify deterioration early.

Families Are Not Automatically Right

Collateral information should inform assessment, not replace the patient's voice.

Carers Need Care Too

Ask how the caring role is affecting them.

Do Not Make Families Responsible for Clinical Risk

They are supporters, not substitute mental health teams.

Reluctance to Involve Family May Have Good Reasons

Consider trauma, abuse and coercion.

Safeguarding Can Involve Either Party

Do not assume one person is always vulnerable and the other always safe.

Family Intervention Is a Specialist Treatment

Ordinary family involvement and formal family therapy are different.

Practical Tips for Everyday Practice

At assessment:

  • Ask who provides support.

  • Ask whom the patient wants involved.

  • Clarify consent for information sharing.

  • Record the agreement clearly.

  • Identify any carers.

  • Ask whether they need support.

When carers contact the service:

  • Listen.

  • Clarify what they have observed.

  • Distinguish facts from interpretations.

  • Explain confidentiality respectfully.

  • Record clinically relevant information.

  • Escalate significant changes.

When sharing information:

  • Check consent.

  • Share only what is appropriate.

  • Use clear language.

  • Avoid unnecessary clinical detail.

  • Revisit consent when circumstances change.

When working with families:

  • Keep the patient involved.

  • Avoid taking sides.

  • Avoid becoming a messenger in family conflict.

  • Validate concerns.

  • Maintain boundaries.

  • Ask carers what they can realistically provide.

  • Do not assume unlimited availability.

  • Signpost carer support.

Useful Phrases

“Who would you like involved in your care?”

“What are you comfortable with us discussing with them?”

“I may not be able to share details of their care, but I can listen to your concerns.”

“What changes have you noticed?”

“What are you most worried about?”

“What normally happens when they become unwell?”

“What helps?”

“How is this affecting you?”

“Are you still able and willing to provide this level of support?”

“You have a right to support in your own role as a carer.”

“I need to take what you’ve told me back to the clinical team.”

“I think this raises a safeguarding concern and needs senior review.”

Common Pitfalls and Misconceptions

“Confidentiality Means I Cannot Speak to the Family”

No.

It may restrict what you disclose.

It does not automatically prevent you from listening.

“The Family Knows the Patient Best, So Their View Should Take Priority”

Not automatically.

Their information is valuable but the patient's autonomy and perspective remain central.

“Family Involvement Is Always Helpful”

No.

Some relationships are unsafe, controlling or harmful.

“If the Patient Has Mental Illness, the Family Should Make Decisions”

No.

Mental illness does not automatically remove capacity.

“Next of Kin Can Make All Decisions”

No.

Legal decision-making authority depends on the specific circumstances.

“The Carer Will Tell Us If They Need Help”

Not necessarily.

Some carers do not identify themselves as carers or may minimise their own needs.

“Families Should Manage Medication”

Only where there is a safe, agreed and appropriate plan.

“A Child Who Helps Their Parent Is Just Being Responsible”

They may be a young carer with significant support needs.

“If Family Members Disagree, We Need to Decide Who Is Right”

Often the first task is to understand both perspectives and identify the specific clinical issue.

“Working With a Family Means Doing Family Therapy”

No.

Formal family interventions require appropriate specialist competence.

Advice for Newly Qualified Practitioners

Confidentiality will probably be one of the areas that makes you most nervous.

Avoid two extremes.

Do not share patient information casually.

But do not use confidentiality as a reason to shut down carers.

A useful phrase is:

“I may not be able to tell you much, but I can listen.”

Learn your organisation's information-sharing policy.

When unsure:

Ask a senior clinician.

Do not guess.

Also remember that carers may be distressed, frightened and exhausted.

If they sound angry, try not to interpret this automatically as hostility towards you.

They may have been managing a crisis for weeks.

Ask:

“What has been happening?”

At the same time, do not let pressure from relatives push you beyond your role.

You can say:

“I understand why you want an answer. That decision needs to come from the responsible clinician.”

Bring difficult family dynamics to supervision.

Useful questions include:

“Am I taking sides?”

“Am I relying too much on the family?”

“Is the patient being excluded from their own care?”

“Am I ignoring a carer’s needs?”

“Is there a safeguarding issue?”

“Am I treating family anxiety as evidence of clinical risk without enough assessment?”

Good family work requires clinical curiosity in every direction.

Situations Requiring Escalation

Seek senior clinical advice or follow urgent procedures where family or carer involvement reveals:

  • Suicidal intent or planning.

  • Significant self-harm.

  • New or worsening psychosis.

  • Possible mania.

  • Serious violence or threats.

  • A carer who reports being frightened or assaulted.

  • A patient who reports abuse, coercion or exploitation by a carer or relative.

  • Domestic abuse.

  • Financial abuse.

  • Severe self-neglect.

  • Medication overdose.

  • Covert medication.

  • Significant medication concerns.

  • Severe intoxication or withdrawal.

  • Acute confusion.

  • Serious physical health deterioration.

  • A child carrying inappropriate caring responsibilities.

  • A young carer exposed to significant risk.

  • A family member who is themselves suicidal or unsafe.

  • Significant concern about mental capacity.

  • Major disagreement about a best-interests decision.

  • Concern that discharge depends on family support that is not available.

  • A family breakdown that threatens the sustainability of the care plan.

  • Any confidentiality question involving serious risk where you are uncertain what can appropriately be shared.

Do not leave complex safeguarding, capacity or confidentiality decisions to an inexperienced practitioner working alone.

5. Summary

Families and carers can play a major role in mental health recovery.

They may provide:

Information.

Practical support.

Emotional support.

Relapse monitoring.

Crisis support.

Knowledge of the person's baseline.

But family involvement must remain:

Person-centred.

Consensual where appropriate.

Boundaried.

Safe.

Confidentiality does not mean refusing to listen to carers.

Distinguish:

Receiving information.

From:

Disclosing information.

Discuss family involvement explicitly with the patient.

Ask:

Who should be involved?

How?

What information can be shared?

Review these decisions over time.

Remember that carers have needs too.

Ask:

How is caring affecting them?

Can they realistically continue?

Do they need a carer's assessment?

Do they know what to do in a crisis?

Do not assume every family relationship is safe.

Consider:

Abuse.

Control.

Exploitation.

Conflict.

Carer burnout.

Young carers.

Keep the patient central.

Use the FAMILY framework:

Find out who matters.

Agree information sharing.

Make use of carer knowledge.

Identify the carer’s needs.

Look for risk and safeguarding.

Your patient remains at the centre.

The central principle is:

Good mental health care should not force a choice between respecting the patient and listening to the people who support them.

It should do both intelligently.

6. Further Reading

NICE CG136: Service User Experience in Adult Mental Health

This is core reading for this lesson.

NICE recommends discussing whether and how the person wants families or carers involved and revisiting this discussion as circumstances change.

Where involvement is wanted, services should negotiate confidentiality and information sharing on an ongoing basis and support carers with appropriate information and access to help.

Where the person does not want family involvement, carers should still be directed towards general information, support and carer assessments where appropriate.

NICE NG150: Supporting Adult Carers

This guideline specifically addresses adults providing unpaid care.

It recommends:

Actively identifying carers.

Explaining their right to information and support.

Ensuring they know about carer's assessments.

Recognising practical, emotional and social needs.

Sharing the information carers need to provide care safely while still respecting the confidentiality of the person receiving care.

This should be considered key reading for case workers.

NICE QS200: Supporting Adult Carers

The accompanying quality standard states that, where the person receiving care consents, carers should be supported to participate actively in care planning and decision-making.

It recognises that carers frequently hold important knowledge about the needs, preferences and functioning of the person they support.

Care Act 2014 and Care and Support Statutory Guidance

The Care Act framework is particularly important for understanding carers' rights in England.

The statutory guidance explains the purpose of carers' assessments and requires consideration of:

The carer's needs.

Their wellbeing.

Whether the caring role is sustainable.

Whether they are willing and able to continue.

The effect of caring on work, education, relationships and daily life.

It also recognises safeguarding situations involving carers.

NICE CG178: Psychosis and Schizophrenia in Adults

This guideline contains particularly strong recommendations regarding carers.

NICE recommends:

Providing carers with information about psychosis, treatment, services, recovery and crisis support.

Negotiating information sharing early.

Reviewing information-sharing arrangements.

Offering education and support.

Offering family intervention to families who live with or are in close contact with the person.

NICE QS80: Family Intervention in Psychosis

NICE's quality standard states that family members of adults with psychosis or schizophrenia should be offered family intervention.

This structured intervention should be delivered by appropriately competent practitioners and involves supportive, educational, problem-solving and crisis-management work.

This reinforces the distinction between ordinary carer involvement and formal psychological family intervention.

NICE NG108: Decision-Making and Mental Capacity

This is important where family involvement intersects with capacity.

NICE emphasises:

Assuming capacity unless there is evidence otherwise.

Supporting people to make their own decisions.

Involving trusted people where appropriate.

Keeping people involved even when they lack capacity.

Consulting carers and family in best-interests decisions to understand the person's wishes, values and preferences.

NHS England: Working With Carers

NHS England provides resources on involving and supporting carers, including material for mental health services.

The principles include recognising carers as important partners while ensuring that support and engagement are appropriate to the service user's wishes and needs.

NHS England: Your Mental Health Care – What You Can Expect

NHS England's current public-facing mental health care guidance states that services should ask people who supports them and how they want their support network, including family, partners, friends and carers, to be involved.

Recommended Books

The Essential Family Guide to Borderline Personality Disorder by Randi Kreger

This can be useful for understanding the experience of relatives supporting someone with significant emotional dysregulation, although it should be read alongside current clinical guidance and not treated as a professional treatment manual.

Motivational Interviewing: Helping People Change and Grow by William R Miller and Stephen Rollnick

Useful when families and patients have different ideas about change and the practitioner needs to avoid becoming caught in argument.

Skills for Communicating with Patients by Jonathan Silverman, Suzanne Kurtz and Juliet Draper

Useful for developing structured communication with patients and relatives.

Patient and Carer Resources

Carers UK

Provides practical information for unpaid carers regarding rights, benefits, employment and support.

Carers Trust

Provides support and information for adult carers and young carers.

Mind

Provides information for families and friends supporting someone experiencing mental health difficulties.

Rethink Mental Illness

Provides resources for carers and family members supporting people with severe mental illness.

NICE Information for the Public

NICE provides public-facing guidance explaining how families and carers can be involved in care, including specific information for psychosis and schizophrenia.

7. Knowledge Check

Question 1

A patient's mother telephones the service and says:

“My son hasn't slept for four nights and is talking about people following him.”

The patient has previously said that he does not want information about his care shared with his mother.

What should the case worker do?

A. Refuse to speak to the mother because of confidentiality.

B. Tell the mother the patient's diagnosis and medication.

C. Listen to the information, explain that specific clinical information may not be shared without permission and ensure the concern reaches the clinical team.

D. Ask the mother to call the patient instead.

Correct answer: C.

Confidentiality may limit what the practitioner can disclose.

It does not automatically prevent the practitioner from receiving potentially important information.

The reported sleep loss and possible persecutory beliefs may indicate significant deterioration and should be escalated appropriately.

Answer A may result in crucial information being lost.

Answer B breaches confidentiality unless there is an appropriate basis for sharing that information.

Answer D does not address the clinical concern.

Question 2

Which statement about family involvement is most accurate?

A. Family should always be involved in mental health care.

B. Family should never be involved because this threatens confidentiality.

C. Family involvement should be discussed with the patient and tailored to their wishes, needs and clinical circumstances.

D. The patient's nearest relative should automatically make all treatment decisions.

Correct answer: C.

NICE recommends discussing how and whether the person wants families or carers involved and reviewing this over time.

Answer A ignores situations involving conflict, abuse or patient preference.

Answer B unnecessarily excludes potentially valuable support.

Answer D confuses family relationship with legal decision-making authority.

Question 3

A patient's wife says:

“I am completely exhausted. I haven't slept properly for months because I keep checking whether he is safe.”

What should the case worker do?

A. Tell her that caring is naturally difficult.

B. Focus only on the patient because the wife is not the service user.

C. Recognise possible carer strain and discuss support, including the possibility of a carer's assessment.

D. Ask her to monitor the patient more closely.

Correct answer: C.

Carers have needs in their own right.

NICE recommends identifying carers and making sure they know about their right to support and carer's assessment.

Answer A minimises significant burden.

Answer B ignores the carer's wellbeing.

Answer D may increase an already unsustainable caring role.

Question 4

A patient says:

“I don't want my father involved in my treatment.”

What is the best initial response?

A. “Family involvement is important, so we need to include him.”

B. Respect the preference and, where appropriate, explore whether there is relevant context the team should understand.

C. Tell the father everything anyway because he is family.

D. Assume the refusal is caused by the patient's mental illness.

Correct answer: B.

The patient's wishes should be respected unless there is a lawful and clinically justified reason for information sharing.

There may also be significant reasons why the patient does not want family involvement, including previous abuse or conflict. NICE explicitly advises practitioners to remain aware of this possibility.

Answers A and C override autonomy.

Answer D makes an unsupported assumption.

Question 5

Which statement about carers and confidentiality is correct?

A. If you cannot disclose information, you cannot listen to carers.

B. Carers are entitled to all clinical information because they provide support.

C. Practitioners should distinguish between receiving information and disclosing confidential information.

D. Confidentiality does not apply where someone is a parent.

Correct answer: C.

This distinction is central to safe family involvement.

Carers may provide important information even when the practitioner cannot disclose details of the patient's care.

Answers A, B and D misunderstand confidentiality.

Question 6

A parent says:

“He is manic.”

What is the most useful response from the case worker?

A. Document that the patient is manic.

B. Ask what specific changes and behaviours the parent has observed.

C. Tell the parent not to use clinical language.

D. Ignore the concern because only clinicians can diagnose mania.

Correct answer: B.

Ask for observable information.

For example:

How much has the person slept?

Has spending changed?

Is speech different?

Has behaviour changed?

The carer's observation may be clinically important, but diagnosis belongs to an appropriately qualified clinician.

Answer A converts a carer's interpretation directly into a diagnosis.

Answer C is unnecessarily dismissive.

Answer D risks losing useful collateral information.

Question 7

A wife says:

“My husband refuses his medication, so I've started crushing it into his food.”

What should the case worker do?

A. Approve the arrangement because taking medication is important.

B. Recommend a better food to hide it in.

C. Recognise that covert medication raises significant clinical, ethical and legal issues and urgently discuss it with an appropriate senior clinician.

D. Ignore it because medication is a family matter.

Correct answer: C.

Covert medication is not a routine family decision.

It raises issues including:

Capacity.

Consent.

Prescribing.

Medication safety.

Best-interests decision-making where relevant.

The case worker should not provide informal medication advice.

Answers A and B move significantly outside competence.

Answer D could leave unsafe practice unaddressed.

Question 8

A 14-year-old says:

“I stay awake at night because Mum sometimes talks about killing herself. I make sure she takes her tablets.”

What is the most appropriate response?

A. Praise the young person for being responsible.

B. Treat this as a normal family responsibility.

C. Recognise that the child appears to be carrying significant caring and safety responsibilities and escalate for appropriate family, young-carer and safeguarding review.

D. Ask the young person to keep doing this until the next appointment.

Correct answer: C.

A child should not become the primary monitor of suicide risk or medication safety.

Young carers may require support in their own right, and the wider family care plan needs review.

Answers A, B and D leave inappropriate responsibility with the child.

Question 9

A patient with capacity wants to live independently.

Their mother insists:

“He cannot possibly cope. He has to live with me.”

What is the best approach?

A. Follow the mother's decision because she is the main carer.

B. Follow the patient's wishes without considering any risk or support needs.

C. Keep the patient's autonomy central while assessing relevant risks, functioning and support needs and considering the mother's concerns as useful information.

D. Ask the mother to make a best-interests decision.

Correct answer: C.

A person with capacity remains entitled to make their own decisions, including decisions others consider unwise.

The mother's concerns may still identify genuine risks or support needs that should be assessed.

Answer A gives the carer authority they may not have.

Answer B ignores legitimate clinical considerations.

Answer D is inappropriate because best-interests decision-making applies where the person lacks capacity for the specific decision.

NICE emphasises assuming capacity unless there is evidence otherwise.

Question 10

A patient's partner tells the case worker:

“He said last night that he was going to kill me, and I've started locking myself in the bedroom.”

What should the case worker do?

A. Assume this is ordinary relationship conflict.

B. Tell the partner to try communicating more calmly.

C. Recognise a significant potential violence and safeguarding concern and escalate urgently according to service procedures.

D. Wait until the patient independently mentions the threat.

Correct answer: C.

The partner has provided information suggesting possible serious risk.

The carer's safety matters independently of the patient's account.

The practitioner should follow appropriate risk, safeguarding and emergency procedures based on immediacy and severity.

Answer A minimises a potentially serious threat.

Answer B places responsibility on the potential victim.

Answer D creates an unsafe delay.

The central lesson is:

Families and carers can be some of the most valuable people involved in mental health care.

They can also be exhausted, frightened, conflicted or vulnerable themselves.

Do not shut them out because confidentiality feels complicated.

Do not involve them automatically because they are family.

Ask the patient what they want.

Listen to carers.

Use their knowledge.

Respect confidentiality.

Support their needs.

Look for safeguarding concerns in every direction.

And remember that the goal is not to make families responsible for mental health care.

The goal is to build a safe partnership around the person receiving it.

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Lesson 10 - Ending Appointments Effectively

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Lesson 8 - De-escalation Skills